GRATEFUL parents have thanked a man after he ran two and a half marathons to raise funds for their daughter who has a rare neurological disorder.
Mother-of-four Rochelle Bradbury said she is ‘amazed’ that family friend Mark Munns managed to raise more than £1,000 for Rett UK to support her daughter Blaise, 18, who suffers with the syndrome.
“It affects mainly girls, but we didn’t have her diagnosis until she was nine and it’s normally a lot sooner than that,” said Shoreham resident Rochelle.
Rett syndrome is a rare condition that affects the development of the brain and can cause physical and mental disability.
Mark, who is an avid runner, decided to raise the money for Blaise after he learned there is very little support out there for sufferers and their families.
The 49-year-old said: “I know Rochelle and Martin [Blaise’s dad] really well. I spoke to them one day and their story struck a chord with me. Just by chatting to them I learnt that there’s so little help for people with Rett and the charity is quite small.
“I just wanted to do something low-key for them.”
Along with a few friends this year, Mark took on the Brighton Marathon, the Brighton Half Marathon and the Man versus Horse Marathon in Wales.
“It was really really great,” said Mark.
“It gives you a buzz to know you have really made a difference and knowing that is all the thanks you need for the effort and the running you have done.”
The money raised will go to Rett UK who host an annual event in Northampton where families with children suffering from Rett syndrome can meet up over a weekend, make new friends, share information and have fun.
Rochelle said: “You stay in a hotel there and it’s a great place to go. That’s what this money helps towards. It means all the Rett groups get to meet up.
“The siblings also get to meet up, because a lot of them have friends who don’t understand what it’s like to have a sister with it.
“Rett UK also has a phone line that’s invaluable for a lot of families. When I first rang them I just fell apart, but they were amazing.”
To learn more about Rett UK and the work they do for people like Blaise, visit click here or call 01582 798911.
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