Courageous Shoreham youngster makes it to school

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HIS parents worried he would never get there, but a four-year-old boy with a rare muscle condition has made it to school.

Charlie Bedford, from Shoreham Beach, has congenital myasthenic syndrome.

Caused by a faulty gene, the condition has left Charlie with severe muscle weakness.

He battled through a turbulent few years to start at Shoreham Beach Primary School on September 8.

“He’s absolutely loving it, and the school has been wonderful,” said Charlie’s mum, Helen.

“He fits in with his classmates; he’s a normal, happy little boy.”

The courageous youngster has gone through dozens of tests and procedures, requiring four general anaesthetics, a muscle biopsy and nerve tests.

His condition does not affect the brain, but it does limit breathing and movement.

For a full interview with Charlie’s mum see this week’s Shoreham Herald, out tomorrow (Thursday, September 23).